Harlan Weisman, MD 10 key themes today
- Hearing patient voice and opening door to their active involvmemnt
- Need for change – current system doesn’t seem to work well for patients, clinicians, care givers – don’t know where to turn for to get information about their disease
- Transparency and Openness about all aspects of what PCORI is going to do as well as in health care system
- Participation – all stakeholders involved from the research agenda to reporting
- Real world health care – not just in a lab or research center but something you can use at the point of care
- Rigorous science
- Communication and dissemination including teaching of patients, clinicians, policy makers and others
- Need to understand drivers of behavioral change
- Actionable research
- Need for partnerships and collaboration
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